Topics to discuss with Hospice Team

There are a number of things that should be addressed early on- preferably during the first week.

Treatment Preferences

  • Have you decided against being resuscitated, is a DNR order in the chart?

  • Have Advance Directive & POLST forms been filled out? If no, discuss with hospice team. (Click here for Advance Directive samples and POLST samples)

  • Are there circumstances where you would want to leave hospice care and be admitted to the hospital?

  • Would want some medical treatment such as antibiotics?

  • Desire for non medical supportive care such as music, art therapy, meditation? Access to support groups?

  • Emphasis on pain with maximizing of comfort?

  • Less pain control with maximizing alertness?

  • Other questions or concerns?

Beliefs and Values

  • It is important and helpful for your hospice team to understand their belief system- are they religious, actively participate in religious practices? What importance does faith or belief have in their life?

  • Do they have any spiritual or existential concerns, such as needing closure with certain family members, desire to document your feelings and thoughts?

  • Your hospice can provide spiritual counselors/chaplains.

  • Other questions or concerns?

  • The hospice team has Chaplains and Social Workers trained to discuss difficult topics.

Symptoms you should discuss with the Hospice Team

  • Shortness of Breath - when does it occur and how severe

  • Pain - Where is it, how often, and how severe (Click here for how to assess pain severity) https://partnerforcare.com/ContentManagement/17

  • Anxiety, Depression

  • There are medications for these symptoms that will be provided by the hospice team